Emotion Dysregulation Inventory (EDI)- Self-Report
Funded by: Eunice Kennedy Shriver National
Institute of Child Health & Human Development (NICHD) of the National Institutes of Health (NIH)
Principal Investigator: Carla A. Mazefsky, PhD
Status: Active, but enrollment is closed
What is the study about?
This study is developing a measure to assess emotion management in autistic teens, autistic adults, and adults with intellectual and developmental disabilities. We developed this measure in partnership with autistic adults and teens.
This study is important because there are no existing measures of emotion regulation for autistic teens and adults. Without measures, researchers and clinicians survey parents and caregivers instead of the autistic person. This also limits services and intervention research because we are not able to measure benefits to emotion dysregulation.
This study will result in the first self-report measure of emotion dysregulation in autism. Our measure will also have clinical cut-off scores for screening and will be appropriate to use across clinical populations.
Will my information be kept private?
The data we collect from study participants are secure and private. This means that we do not have your name written anywhere on the data. We use a random number. So, instead of having data, for example, that is called “John Smith interview”, it might be called “#101 interview”.
- The file that links your name to the data is stored separately and not shared.
- We do not collect data from your medical records.
- We do not have access to your medical records.
- We are not putting data or diagnoses into your medical records.
- Your name, address, and other information that can identify who you is not being shared with the government or any funder or collaborator.
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How do I find out more?
Contact the Project Coordinator at emotionresearch@upmc.edu or call 412-260-6593